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A valued partnership

SNAC is a proud partner of the Scottish Paediatric and Adolescent Rheumatology Network (SPARN). One of NHS Scotland’s National Managed Clinical Networks, SPARN works to ensure that children throughout the country with rheumatic conditions have access to the highest standards of care.

Visit SPARN to learn more about the resources it offers children and families with JIA.

The bigger picture

People throughout the world are working to ensure children with JIA enjoy the benefits of the latest research, the highest standards of treatment, and the best possible care and support.

Paediatric Rheumatology International Trials Organisation

PRINTO is the international research organisation running trials in JIA. Printo information for families.

Paediatric Rheumatology European Association

PRES is the European scientific society for healthcare professionals in paediatric rheumatology.

European Network for Children with Arthritis

ENCA is a pan-European network led for and by parents and young people affected by arthritis and autoinflammatory diseases.

ENCA is supported by the Paediatric Rheumatology European Society (PReS), and works closely with PReS to ensure that the voice of young people and families is integrated into paediatric rheumatology research across Europe.

ENCA’s role is help national patient and parent organisations to connect with each other, in order to learn and work collaboratively. ENCA also enables people and organisations to have a voice and to network by providing spaces for them to connect on social media, take part in awareness campaigns, and by participating in an annual conference. SNAC is a member of ENCA, and we have learned much from their experiences of supporting families with JIA.

British Society for Rheumatology

BSR is the UK specialist medical society for rheumatology and musculoskeletal care professionals.

The Royal College of Paediatrics and Child Health

RCPCH is the professional body for paediatricians in the United Kingdom.

Other charities and organisations working to support families with JIA in the UK and Ireland

CCAA (Childrens Chronic Arthritis Association) supports children with JIA in England and Wales. The charity is run by a group of volunteers who have been personally affected by the condition, and they are passionate about supporting others and providing a support network for children with arthritis and their families.

Juvenile Arthritis Research is a charitable project working to find a cure for JIA, to raise awareness that children and young people get arthritis, and to support families at the point of diagnosis in England and Wales.

JIA-at-NRAS is a service operated by the National Rheumatoid Arthritis Society that supports families and young people affected by JIA.

Kids Like Us supports children, young people and families affected by juvenile arthritis within the West Midlands.

iCAN (Irish Children’s Arthritis Network) is a nationwide charity that supports families living with JIA and other rheumatological issues.

Versus Arthritis was formed following the merger of Arthritis Research and Arthritis Care. Versus Arthritis Scotland caters for children with JIA age 10 and above and adults with arthritis.

What? Why? Children in Hospital When a child needs to have a procedure in hospital this can be a very stressful and scary time for them and you. WWCIH make videos to help children and parents prepare for hospital and answer some of their questions starting with What? and Why? SNAC have collaborated with WWCIH to produce videos on Joint Injections and Uveitis. Joint-injection and Uveitis These and many others can be found here.

 

WORD Day (World Young Rheumatic Diseases Day) is an annual event that takes place on the 18th of March every year. The aim is to raise paediatric rheumatology awareness and knowledge level of parents, doctors, primary practitioners, teachers, and the general public.

 

More related charities

Olivia’s Vision provides information, support and advice for anyone affected by uveitis.

RAiISE work to raise awareness of invisible illness in young people.

Sleep Scotland is a children’s sleep charity, promoting healthy sleep for children and young people across the country.

Teapot Trust help children, young people and their families cope with the physical and mental challenges of a long-term condition through art therapy.

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