Crieff 2019

Wave for the camera!

 

Celebrating SNAC's 10th anniversary at Edinburgh Zoo!

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Snac Logo AW-01-02

Welcome to SNAC, our community site that shares information on JIA, events that we hold and much more.

JIA (Juvenile Idiopathic Arthritis) affects about one in every thousand under 16s yet most people don’t even know that kids can get arthritis.

SNAC was set up by parents of kids with JIA to provide support and information for families affected by the condition. On our website you will find information and real life experience about

  • The various types of JIA and related conditions.
  • The therapies and medicines used to treat the condition
  • What is being done to improve the treatments and outcomes
  • How to cope, from first diagnosis onwards.

To anyone affected by JIA, we hope you find the content helpful and informative, we have worked with the Scottish Paediatric Rheumatology teams to ensure the content’s accuracy.

1000
One in a Thousand Kids get JIA
2008
SNAC Founded
429
Buzzys distributed

Recent Achievements

We love to celebrate the things that our kids achieve so here’s a few of the recent posts.  You can see some more in our Blogs

Our Heroic Fundraisers

SNAC is run by a group of parent volunteers all of whom have a child with JIA (Juvenile Idiopathic Arthritis)   We love what we do and we get enormous satisfaction from seeing the difference that SNAC has made in peoples lives.

NONE of this would be possible without the army of people who give their time to raise funds on our behalf.  We’ll ost about as many as we can here but if you have helped and don’t see a post here then please get in touch and tell us all about it – with photos if you can!  This is the most recent few, please have a look at the Blogs to see what else has been happening!

About JIA

Juvenile Arthritis

JIA presents itself in a number of different ways and the condition is split into 7 main groups. Learn more about them here.

What is JIA?

Treatment

Treatment varies by condition and how it affects the individual. We explain the medications used in the treatment and how they might affect your child.

Treatment

Research

The prognosis for JIA has been hugely improved over the last few decades and ongoing research has played a vital part of this. Find out how you can help and why it isn’t as scary as it seems.

Research

What’s Happening…

Hipjoint Golf thank you so much to all the players, and to Danny and Val for all their hard work organising their annual golf event for SNAC at the Kilspindie Golf Club today.
Some marvellous scores and great golf.
Very grateful to you all. 👏🏻

Hipjoint Golf thank you so much to all the players, and to Danny and Val for all their hard work organising their annual golf event for SNAC at the Kilspindie Golf Club today.
Some marvellous scores and great golf.
Very grateful to you all. 👏🏻
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Comment on Facebook

Well done Danny & Val - it was a great effort and a most enjoyable day!

Thank you so much to the customers of Aberlady Post Office and Aberlady Village Store for their generosity. 
Today £163.50 has been banked for SNAC.
Every penny counts towards our work to help children with arthritis.
👏🏻

Thank you so much to the customers of Aberlady Post Office and Aberlady Village Store for their generosity.
Today £163.50 has been banked for SNAC.
Every penny counts towards our work to help children with arthritis.
👏🏻
... See MoreSee Less

Causing chaos at the Post office - 1st lot of orders on their way (2nd class to save costs) 

Hope everyone who receives their journal finds it helpful.Image attachmentImage attachment

Causing chaos at the Post office - 1st lot of orders on their way (2nd class to save costs)

Hope everyone who receives their journal finds it helpful.
... See MoreSee Less

 

Comment on Facebook

Good evening, just wondering how my daughter can order a journal?

Our journals have arrived! Getting ready to post the 1st lot of journal orders  - more info below. 

SNAC Journal 

SNAC are delighted to share news of our latest project - A journal for children with JIA. 
This journal, hot off the printing press, is available free of charge to all children with JIA in Scotland thanks to the generous fundraising by the family and friends of Aimee Buchan, a child with JIA who was the inspiration behind this lovely journal. 

The journal has been devised with the help of numerous children and parents who have attended workshops to discuss their ideas, develop their input and review the content. 
The journal includes a skeleton for each calendar month with stickers to indicate the joints that are causing difficulty and pain for the child. Beside the skeleton is a section for things to ask/ tell the rheumatology team at hospital visits. 
The journal also includes space to write/draw daily thoughts as well as helpful rheumatology content including
a glossary, JIA stories, how to pronounce medical words section and links for further information. 
It includes some tips from children and young people on: 
Hospital visits 
What to do when you’re sore
Taking medications
Managing school
Coping with JIA.
Outside of Scotland, the journal is for sale for £15 + postage. 

Please get in touch secretary@snac.uk.com if you would like a copy. 
Thank you to SPARN (Scottish Paediatric and Adolescent Rheumatology Network) for their helpful contributions and reviews. 
We hope you find it helpful!

Our journals have arrived! Getting ready to post the 1st lot of journal orders - more info below.

SNAC Journal

SNAC are delighted to share news of our latest project - A journal for children with JIA.
This journal, hot off the printing press, is available free of charge to all children with JIA in Scotland thanks to the generous fundraising by the family and friends of Aimee Buchan, a child with JIA who was the inspiration behind this lovely journal.

The journal has been devised with the help of numerous children and parents who have attended workshops to discuss their ideas, develop their input and review the content.
The journal includes a skeleton for each calendar month with stickers to indicate the joints that are causing difficulty and pain for the child. Beside the skeleton is a section for things to ask/ tell the rheumatology team at hospital visits.
The journal also includes space to write/draw daily thoughts as well as helpful rheumatology content including
a glossary, JIA stories, how to pronounce medical words section and links for further information.
It includes some tips from children and young people on:
Hospital visits
What to do when you’re sore
Taking medications
Managing school
Coping with JIA.
Outside of Scotland, the journal is for sale for £15 + postage.

Please get in touch secretary@snac.uk.com if you would like a copy.
Thank you to SPARN (Scottish Paediatric and Adolescent Rheumatology Network) for their helpful contributions and reviews.
We hope you find it helpful!
... See MoreSee Less

 

Comment on Facebook

Just received your email Annmarie thanks

I emailed for a copy,not sure if received

Brilliant, look forward to receiving Lilahs. Thanks to Aimees friends and family for all their hard work. X

Brilliant well done.💗💗

🤩

🤩

Super!! X

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