In Feb/March 2017 SNAC were delighted to fund another Relax Kids course of 3 sessions with Donna Fairley for children aged 6-11 with JIA from the Aberdeen area. Some feedback is shared below:
Each session took the children through Relax Kids ‘seven steps’: Move; Play; Stretch; Feel; Breathe; Believe; Relax.
Parents reflected on how the course had met their expectations:
“Kaydee (9) has enjoyed every session and talks about what she has learned with her school friends & family. Highly recommend the course”, Fiona Cowie, parent & SNAC Local Area Family Consultant.
“Over and above (expectations). Callum loved it and I could see how it worked. Callum used the tools” Holly Edmonds, parent.
“Eva…making new friends and also using the steps on a weekly basis, particularly around injection times.” Lesley Kane, parent.
“Lovely small group, no pressure, plenty of time to speak to other parents, share experiences and expectations. Skye always keen to come and participate in the group.” Nicola Burn, parent.
Parents shared their highlights “Seeing Callum use the tools at home ; Meeting other parents; Seeing Eva use the steps and tools given and actually wanting to use them; company of other parents; Skye feeling more confident and willing to share her experience of group and her condition with other people.”
Each child either made or was given a practical tool to take home every week. For example the ‘Mind Jar/Calm Bottle’ to model emotions, Hoberman Sphere to help with breathing exercises and ‘stretch cards’ with Yoga positions.
This group particularly enjoyed the breathing techniques taught with the peer massage, relaxation, games the Hoberman sphere: https://www.facebook.com/WellBalancedstudio/videos/1857194624554811/
and the calm bottle:
All parents agreed the course was a good use of SNAC funds and would recommend the course to other parents of a child with JIA:
“hugely beneficial to the children and parents alike” Nicola Burn, parent.”
Alison Ross, paediatric rheumatology nurse and Kate O’Donnell, SNAC committee member were delighted to welcome 6 families to Hoodles, Aberdeenshire, on Saturday 4th February 2017 for soft play, coffee and cake.
The children enjoyed party food, musical games and cupcake decorating in the party room after soft play. Thank you to everyone who came along!
Thank you so much to everyone who attended Aberdeen Science Centre this afternoon and to Alison Elder, Alison Ross & Willie Templeton for your fantastic support! SNAC families made some great robot hands & mini robots, had fun with bubbles & enjoyed cake and chat 🍰 🍪
SNAC are delighted to present the wonderful tale of Jack and the Beanstalk performed by the Hopscotch Theatre Company.
A funny and entertaining performance, suitable for the whole family of ‘Jack and the Beanstalk’ starting at: 2.00pm – Doors open at 1.30pm
SATURDAY 3rd DECEMBER
Stewart’s Melville College (Tom Flemming Centre)
Queensferry Road, Edinburgh, EH4 3EZ
55 minutes of fun, songs, jokes and laughter with
Hopscotch’s pantomime for children with arthritis
(or any other rheumatological condition) and their families.
SNAC are funding an event at 2-4.30pm.
There will be a bubbles show for all ages, a Robot Hand workshop for age 6+, exhibits on the floor and refreshments upstairs.
This event is open to children with JIA aged from pre-school to S2 and their immediate family.
This is a great way to meet other families with children who have JIA.
Spaces are funded but limited so booking is essential. For more information and to book a place please contact firstname.lastname@example.org with the names and ages of your children and how many spaces you require by Thursday 10th November. Many Thanks!
Please find a link from Satrosphere 2015 below for a view on the experiences enjoyed last year!
Date: Saturday 19th November 2016
Venue: Bay Hotel, Kinghorn, Fife.
The day provides the opportunity for parents to find out more about JIA and have the opportunity to meet fellow parents and hospital staff in a more relaxed, informal environment. Programme to cover JIA: Questions about diagnosis, Questions about Medications, Research, Getting older and more independent. Educational component provided by the Paediatric Rheumatology Teams.
Entry free, but booking required. Lunch and refreshments provided.
Due to restricted facilities we are unable to provide childcare at this event.
Please contact email@example.com or phone 07504 609 510 for more information or to book a place.
Sunday 25th September 2016 (10.30am – 1.00pm)
This is a great opportunity for your family to meet other families with children who have JIA. Aimed specifically for 6 years and above (younger children may also attend but will be unable to take part).
Foxfall and Ringo activities booked.
Booking is essential –
Please email firstname.lastname@example.org to book your place.
Please meet at Foxlake at 10.30am for an 11.00am start.
- A swimsuit/trunks (for under wetsuit)
- A towel
- Your own closed toe shoes, which you don’t mind getting wet.
- Warm clothes for afterwards
Please note siblings can take part too – all children with JIA will be funded. Siblings will cost £5.00
each and adults £10.00. If you require financial help please email email@example.com otherwise please just pay on the day.
An area for spectating will be provided as well as tea/coffee/juice and snacks
On Saturday and Sunday the 28th and 29th May 2016 SNAC T Shirts appeared at the Edinburgh Marathon once again. SNAC flags and banners were visible around the course in Edinburgh.
As runners waited for buses and queued for the toilets the purple T Shirts of SNAC began to emerge! 120 runners showed up and ran for the Charity!! The relay “pens” were dotted with purple. It was quite emotional to see the amount of support!
The SNAC committee are very overwhelmed and grateful for everyone’s kindness and efforts! We had entries in the children’s races, the full and half marathon, the 10k and the relay. We even had some children with arthritis taking part, which is wonderful!
The supporters around the course did a fantastic job of keeping everyone going and raising much needed awareness of children’s arthritis.
This year was the first time SNAC had a tent at the finish, supporters, runners and families all met. It was fantastic to see everyone who had given the time to support our Charity and raise funds and awareness for Children’ arthritis.
Money is still trickling in, however, your efforts have raised an enormous £25,000 this year!
We simply wish to say THANK YOU! We appreciate your support very much, hopefully we will see you all again in 2018!
If you have any photos from the day that we can add to the website please send them to firstname.lastname@example.org and we’ll put them on.
A personal perspective of the Edinburgh Marathon from Kate O’Donnell…
“What a brilliant weekend at the Edinburgh Marathon Festival 2016 raising funds for SNAC Scottish Network for Arthritis in Children. Tom and Zoe (who was diagnosed with JIA age 3.5) ran in the Junior 2K and 1.5K races and Martin, Kate, Gina and Andrew ran in the relay marathon in which we finishing in 3h39m30s. The atmosphere was wonderful with supporters cheering us on, handing out sweets & water. The SNAC supporters in particular were awesome & really boosted us! Thank you to all our sponsors & supporters! To the runners & supporters all, a huge well done!”