The Big chop

By | Fund Raising | No Comments

Thank you to Kelly McColl who has bravely had her hair chopped and her nephew Connor who has had his head shaved for SNAC. In her own words “I have been thinking of some fundraising ideas lately as I have only been part of the group since March and I can’t stress enough the difference you all at SNAC have made to not only my daughter Emma but our family by including all of is in everything. Emma came up with a fantastic idea (according to her 😂) that I should get my very long hair chooped off to see if i could get any sponsors. My family and friends are delighted that I have agreed to this as I’ve been growing my hair for years however I am all in and I will be going for the chop…The team at SNAC and all the parents and children are amazing and an inspiration and as it was Emma’s suggestion I couldn’t refuse.”

If you would like to sponsor Kelly please see link below.

https://www.justgiving.com/fundraising/emmalouisemitchel

 

The Amazing Gregor Tennant!

By | Acheivements, News | No Comments
Gregors mum Karen posted about his achievements on Facebook and has kindly allowed us to share that here. 
If you have a story to tell about your childs achievements – big or small – please let us know!

Hi, my youngest son Gregor was diagnosed with JIA in September last year and has been on treatment since as it affected his joints and also his eyes.
Gregor has been an absolute trooper and has put up with the weekly injections, two hourly eye drops, numerous blood tests and steroid injections and drips.
For a wee boy who was terrified of needles he has been amazing.

Anyway his Rheumatology nurse Catriona suggested I write to you as Gregor has managed to keep himself active throughout with swimming, cycling, football, running and hip hop. We were over the moon last Friday when he was presented with “Sports personality of the year” in his class at Lanark Primary.
Catriona thought this would be a good story to share with others. I have some pictures of him receiving his award but not very good quality as I was too emotional at the time!

Karen also sent us photos of Gregor receiving

“… two are medals he has won throughout the year which the school have asked him to take in ( I think they were both for football) He also recently sat his Bronze Freestyle BATD exam and was awarded highly commended for Hip Hop.”

Congratulations to Gregor from all at SNAC!

Focus Group – 19th July

By | News, Research | No Comments

SNAC have been approached to find volunteers to attend a meeting in Liverpool on 19th July for a focus group related to steroid use in JIA.  If you think you might be able to attend, or would like some more information then please contact fionadonaldson@snac.uk.com

From the organisers:

We are holding a discussion group on the 19th July in Liverpool for JIA PPI consumers we would greatly appreciate if you may identify any patients in your network who may be interested.

We will pay for child care, travel, accommodation and pay them for the day activity. Food and refreshments will be provided on the day.

Time is quite short at the moment so that I would greatly appreciate if you may forward me with the interested participants’  contact numbers or emails so may answer any questions they may have and details for the meeting.

 

JIA – A Research Project

By | News, Research | No Comments

We received this request from a student at Oxford Brookes University and would encourage as many of you to help them out as possible.

Dear Sir/Madam,

My name is Sajida Parveen and I am a student at Oxford Brookes University studying for an MSc in Psychology. As part of my course, I am conducting a research study to investigate Juvenile Idiopathic Arthritis (JIA) and its impact on transcription skills (handwriting and typing).

I am writing to ask for your help in inviting parents of children with JIA to take part in this study. This involves completing an online questionnaire about the impact of JIA on their child’s writing performance and takes no longer than 15 minutes to complete.
As this is a student project, the questionnaire will be available only until the end of June 2017.

The questionnaire is online at https://brookeshls.co1.qualtrics.com/jfe/form/SV_0UK6L3thAORIOLH

You Are Here!

By | News | No Comments

We’ve used the wonders of the Internet to plot the locations (approximate) of every SNAC family that we have details for.   If you aren’t already a member please consider joining.  It’s free and helps us to keep in touch and plan what we do.

Join SNAC

Relax Kids – Glasgow

By | News, Upcoming Events | No Comments

SNAC are funding a series of Relax Kids courses around Scotland and we have places available for the sessions in Glasgow.
Elaine Cavana (Relax Kids coach) will deliver 3 inclusive Relax Kids sessions which are based on ‘7 steps’ of move; play; stretch; feel; breathe; believe; relax. The steps include games, yoga stretching, peer massage (optional), breathing techniques, positive affirmations and relaxation. The aim is to teach children techniques they can use to help them cope with their JIA journey.
When: Saturday 9.30-11.30am 10th June and 1-3pm on 17th/24th June 2017 all dates inclusive.

Where: Tesco Shettleston Extra, Community Room, Annick Street, Shettleston Industrial Estate, Glasgow, G32 7JE

Contact: Please see http://www.snac.uk.com/relax-kids-for-snac/ for examples of what you can expect. Please email cavana98@aol.com to book your place. For more information please either email or phone Elaine on 07984 237531