Crieff 2017

Smile for the camera!

 

Great day out

Having a blast!

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Snac Logo AW-01-02

Welcome to SNAC, our community site that shares information on JIA, events that we hold and much more.

JIA (Juvenile Idiopathic Arthritis) affects about one in every thousand under 16s yet most people don’t even know that kids can get arthritis.

SNAC was set up by parents of kids with JIA to provide support and information for families affected by the condition. On our website you will find information and real life experience about

  • The various types of JIA and related conditions.
  • The therapies and medicines used to treat the condition
  • What is being done to improve the treatments and outcomes
  • How to cope, from first diagnosis onwards.

To anyone affected by JIA, we hope you find the content helpful and informative, we have worked with the Scottish Paediatric Rheumatology teams to ensure the content’s accuracy.

1000
One in a Thousand Kids get JIA
2008
SNAC Founded
429
Buzzys distributed

Recent Achievements

We love to celebrate the things that our kids achieve so here’s a few of the recent posts.  You can see some more in our Blogs

Our Heroic Fundraisers

SNAC is run by a group of parent volunteers all of whom have a child with JIA (Juvenile Idiopathic Arthritis)   We love what we do and we get enormous satisfaction from seeing the difference that SNAC has made in peoples lives.

NONE of this would be possible without the army of people who give their time to raise funds on our behalf.  We’ll ost about as many as we can here but if you have helped and don’t see a post here then please get in touch and tell us all about it – with photos if you can!  This is the most recent few, please have a look at the Blogs to see what else has been happening!

About JIA

Juvenile Arthritis

JIA presents itself in a number of different ways and the condition is split into 7 main groups. Learn more about them here.

What is JIA?

Treatment

Treatment varies by condition and how it affects the individual. We explain the medications used in the treatment and how they might affect your child.

Treatment

Research

The prognosis for JIA has been hugely improved over the last few decades and ongoing research has played a vital part of this. Find out how you can help and why it isn’t as scary as it seems.

Research

What’s Happening…

Look out for Caragh tonight on Operation Ouch CBBC @5.30pm today
Caragh has JIA and she’s certainly had her struggles throughout the years but she remains resilient in facing these. She’s appearing on Operation Ouch this evening helping to raise awareness of JIA.
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SNAC celebrations as we turn 10 today. #kidsgetarthritistoo #supportingfamilieswithjia #SNACis10

SNAC celebrations as we turn 10 today. #kidsgetarthritistoo #supportingfamilieswithjia #SNACis10 ... See MoreSee Less

 

Comment on Facebook

You have achieved an enormous amount over the years SNAC! It's lovely to read it all. We can't wait to see what the next 10 will bring ❤️ #jia

Happy Birthday to an amazing team

Happy Birthday SNAC! What an amazing decade you’ve had - Thanks for all that you do! ✨🎉🎂

Happy 10th Birthday SNAC 💜💜💜💜💜💜💜💜💜💜

Thanks to all who have made SNAC the fantastic, welcoming charity it is. 🏆

Happy 10th year. Thank you for everything, an amazing charity xxx

Congratulations, happy birthday & well done on all the hard work & support you've provided.

Happy birthday SNAC. awesome team 👏

Happy birthday snac x

Ten year of fabulous! Happy birthday SNAC XXX

Happy birthday SNAC x Thank you for the amazing support xx

Happy birthday thanks for your support

Well done SNAC, a great support group!!

+ View previous comments

Today (16th January 2019), marks the 10th anniversary of the creation of SNAC (Scottish Network for Arthritis in Children).  We are the only volunteer support charity network in Scotland for the parents and children who have JIA (Juvenile Idiopathic Arthritis) and we have grown from a group of a few parents to more than 750 members. We could not have achieved all we have done without the help of so many people and we would like to thank them all.

In the past 10 years, we have grown and developed our services and support to a level which we never envisioned when we were just a small group of parents meeting in coffee shops every few weeks.  This anniversary is a fantastic opportunity to celebrate our achievements, raise awareness and outline our plans for the future.

SNAC continues to be run by volunteer parents of children with JIA and is wholly dependent on growth through the fundraising efforts of a massive team of SNAC members and their families and friends.  In our 10 years of operating, fundraisers have raised over £400,000 for the charity and that money has allowed us to deliver various initiatives to support all those affected by JIA. 

Our achievements:

1. Welcome Packs
The creation of Welcome Packs for newly diagnosed children.  These packs have been overwhelmingly well received by families as it makes the children feel they are part of a family and no longer the only one with JIA. It includes a small bear called Arthur who has proved to so popular that we have opened an e-Bay shop where we can sell a bigger version along with other SNAC merchandise.

2. Annual Parents Days
We host Annual Parents Days.  These are information days with clinical specialists from all 
over Scotland presenting up to date information for parents. 10 have been held so far all over Scotland with over 400 parents in attendance.

3. Family Weekends at Crieff Hydro
Fun information and networking weekends for the whole family. We have held nine so far with 10 and 11 already booked at Crieff Hydro in March 2019 and 2020. 250 families have attended these weekends and we are indebted to the clinical specialists who give their free time to attend and support these weekends.

4. Fun activity and networking Days
We provide various activities for the children with a chance for families to meet and network. These are held all over Scotland and include activities like soft plays, climbing, indoor sledging, trampolining, science centre visits, picnics, swimming, water sports, pantomimes, gymnastics and visits to venues such as Deep Sea World. To date we have run over 60 events, attended by over 1000 children and their families, with even more planned for the coming year.

5. Support
Local area contacts have been supporting families since we first began and continue to lend a helping hand - or indeed ear, whenever needed.

The SNAC website was created in 2010 and is continually being improved and developed with clinical input from the SPARN team.

Facebook groups - a closed group with almost 400 members and an open group with almost 500 members.

We have supplied over 500 Buzzys which help children cope with the pain of injections. Buzzy is a small vibrating device, which helps block pain signals when children are having what are often very painful injections.

We have funded a booklet explaining uveitis (inflammation of the lining of the eye), a common side effect of JIA.

We have funded Relax Kids courses throughout Scotland.

We have funded Distraction Boxes to help clinicians keep younger children occupied during appointments.

We have funded the creation of six short films to help explain procedures to children with painful or frightening experiences such as joint injections, made in partnership with the charity What? Why? Children in Hospital.

6. Fundraising
SNAC members, their families and friends organise their own fundraising events including raffles, bake sales, walks, runs, fun days, parties and many more.  To date over £270,000 has been raised.  This has been complimented with a further £30,000 from grants from private businesses.

In addition to this SNAC organise runners and supporters for the Edinburgh Marathon every second year. In the last six years, over 460 runners have raised in excess of £100k. That totals well over £400k raised in the 10 years since we became a charity.

7. Collaborations
SNAC are indebted to SPARN (Scottish Paediatric and Adolescent Rheumatology Network) - we have worked closely with the clinicians who look after our children across Scotland since their network formed in the same year as SNAC. We have a committee member on their Steering Group and rely on clinicians giving up their free time to present at our annual Parents Days and Family Weekends.

We have worked with other third sector organisations including the Tea Pot Trust, Arthritis Care Scotland (Versus Arthritis) and many others to help children and their families.

8. Woking with the Scottish Parliament
SNAC held a reception at the Scottish Parliament with over 150 guests and many MSPs attending. The first ever SNAC award for outstanding services to Paediatric Rheumatology was presented to our Patron Dr Joyce Davidson and many MSPs learned that “kids get arthritis too”.

We followed this up with presentations on children’s conditions at the Cross-Party Group for Arthritis and Musculoskeletal conditions at the Scottish Parliament in May this year. We continue to represent children at the Cross-Party Group.

9. Youth Philanthropy Initiative
YPI is an amazing way for young people to learn about charities and their work with the chance to raise funds for them. SNAC has been fortunate enough to have many schools across the country choosing to present SNAC and 4 groups have won a £3000 grant each for SNAC.  This is a huge boost to SNAC funds and an incredible way to raise awareness of JIA.

10. Aimee’s Fund 
Aimee’s Fund was set up in 2015 following the tragic loss of the daughter of a SNAC committee member to a complication of her systemic JIA. The fund provides grants for children with JIA for things which will help with their condition and has so far supplied grants to 24 children for items such as laptops, bikes, specialist clothing and swimming lessons.

Today (16th January 2019), marks the 10th anniversary of the creation of SNAC (Scottish Network for Arthritis in Children). We are the only volunteer support charity network in Scotland for the parents and children who have JIA (Juvenile Idiopathic Arthritis) and we have grown from a group of a few parents to more than 750 members. We could not have achieved all we have done without the help of so many people and we would like to thank them all.

In the past 10 years, we have grown and developed our services and support to a level which we never envisioned when we were just a small group of parents meeting in coffee shops every few weeks. This anniversary is a fantastic opportunity to celebrate our achievements, raise awareness and outline our plans for the future.

SNAC continues to be run by volunteer parents of children with JIA and is wholly dependent on growth through the fundraising efforts of a massive team of SNAC members and their families and friends. In our 10 years of operating, fundraisers have raised over £400,000 for the charity and that money has allowed us to deliver various initiatives to support all those affected by JIA.

Our achievements:

1. Welcome Packs
The creation of Welcome Packs for newly diagnosed children. These packs have been overwhelmingly well received by families as it makes the children feel they are part of a family and no longer the only one with JIA. It includes a small bear called Arthur who has proved to so popular that we have opened an e-Bay shop where we can sell a bigger version along with other SNAC merchandise.

2. Annual Parents Days
We host Annual Parents Days. These are information days with clinical specialists from all
over Scotland presenting up to date information for parents. 10 have been held so far all over Scotland with over 400 parents in attendance.

3. Family Weekends at Crieff Hydro
Fun information and networking weekends for the whole family. We have held nine so far with 10 and 11 already booked at Crieff Hydro in March 2019 and 2020. 250 families have attended these weekends and we are indebted to the clinical specialists who give their free time to attend and support these weekends.

4. Fun activity and networking Days
We provide various activities for the children with a chance for families to meet and network. These are held all over Scotland and include activities like soft plays, climbing, indoor sledging, trampolining, science centre visits, picnics, swimming, water sports, pantomimes, gymnastics and visits to venues such as Deep Sea World. To date we have run over 60 events, attended by over 1000 children and their families, with even more planned for the coming year.

5. Support
Local area contacts have been supporting families since we first began and continue to lend a helping hand - or indeed ear, whenever needed.

The SNAC website was created in 2010 and is continually being improved and developed with clinical input from the SPARN team.

Facebook groups - a closed group with almost 400 members and an open group with almost 500 members.

We have supplied over 500 Buzzys which help children cope with the pain of injections. Buzzy is a small vibrating device, which helps block pain signals when children are having what are often very painful injections.

We have funded a booklet explaining uveitis (inflammation of the lining of the eye), a common side effect of JIA.

We have funded Relax Kids courses throughout Scotland.

We have funded Distraction Boxes to help clinicians keep younger children occupied during appointments.

We have funded the creation of six short films to help explain procedures to children with painful or frightening experiences such as joint injections, made in partnership with the charity What? Why? Children in Hospital.

6. Fundraising
SNAC members, their families and friends organise their own fundraising events including raffles, bake sales, walks, runs, fun days, parties and many more. To date over £270,000 has been raised. This has been complimented with a further £30,000 from grants from private businesses.

In addition to this SNAC organise runners and supporters for the Edinburgh Marathon every second year. In the last six years, over 460 runners have raised in excess of £100k. That totals well over £400k raised in the 10 years since we became a charity.

7. Collaborations
SNAC are indebted to SPARN (Scottish Paediatric and Adolescent Rheumatology Network) - we have worked closely with the clinicians who look after our children across Scotland since their network formed in the same year as SNAC. We have a committee member on their Steering Group and rely on clinicians giving up their free time to present at our annual Parents Days and Family Weekends.

We have worked with other third sector organisations including the Tea Pot Trust, Arthritis Care Scotland (Versus Arthritis) and many others to help children and their families.

8. Woking with the Scottish Parliament
SNAC held a reception at the Scottish Parliament with over 150 guests and many MSPs attending. The first ever SNAC award for outstanding services to Paediatric Rheumatology was presented to our Patron Dr Joyce Davidson and many MSPs learned that “kids get arthritis too”.

We followed this up with presentations on children’s conditions at the Cross-Party Group for Arthritis and Musculoskeletal conditions at the Scottish Parliament in May this year. We continue to represent children at the Cross-Party Group.

9. Youth Philanthropy Initiative
YPI is an amazing way for young people to learn about charities and their work with the chance to raise funds for them. SNAC has been fortunate enough to have many schools across the country choosing to present SNAC and 4 groups have won a £3000 grant each for SNAC. This is a huge boost to SNAC funds and an incredible way to raise awareness of JIA.

10. Aimee’s Fund
Aimee’s Fund was set up in 2015 following the tragic loss of the daughter of a SNAC committee member to a complication of her systemic JIA. The fund provides grants for children with JIA for things which will help with their condition and has so far supplied grants to 24 children for items such as laptops, bikes, specialist clothing and swimming lessons.
... See MoreSee Less

 

Comment on Facebook

Congratulations 🎊

Wow! Congratulations to all at SNAC- what a catalogue of achievements! Inspiring and humbling. Can’t wait to see what you do in the next 10!

Great support for families! Thank you 😊

Incredible! Congratulations 💖💖💖

You guys at SNAC are truly amazing and I don’t know how we would have kept our heeds this last year without you, the parents forum for me has been a lifeline and the networking events- to be able to ask other parents how they deal with pain, sickness, starting school, what sports they find easiest ect ect and for Cara it has been great to meet other kids with Arthritis, it effects her every day yet it’s hard to understand at 4, it makes me laugh listening to small kids boast about how many injections they take every week, it kinda normalises it- if that’s ever possible, so thanks doesn’t seem enough- SNAC Rock!!

Happy Birthday SNAC! Xx

Amazing! 😍

Patrick

Congratulations SNAC and what a great success thank you to all x

SUCH FANTASTIC SUPPORT TOO 😊😙💋

A big Happy birthday and congratulations!! We wouldn't be where we are now without all the support of SNAC xx

Fantastic achievements! Congratulations 🎊 💐 ♥️ 🎂🐻

Happy birthday SNAC!! Never knew Bronwyn shared her birthday with you..

Happy Birthday SNAC! A huge thank you to Sharon Douglas and Tracy Rendall for all the hard work and support over the years! Can’t believe how quickly 10years passes 🎉👏

Happy Birthday SNAC! ❤️ 🎉 Xx

Keep up the good work.

Such amazing achievements! I am so thankful to you all for the support SNAC provides xx

Wonderful charity and support network. Thank you. 😍

Congratulations SNAC on your great achievements and support for families. Thank you for explaining the many ways in which you give support.

Wow ! You have achieved so much and helped so many, thank you for everything you have done and continue to do. I love working with you all xx

Happy birthday- this was a great support network

+ View previous comments

1 month ago

SNAC Scottish Network for Arthritis in Children

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2 months ago

SNAC Scottish Network for Arthritis in Children
WORD Day
A great new initiative to increase awareness of all rheumatic conditions including JIA. 
Like and follow their page for more information.

WORD Day
A great new initiative to increase awareness of all rheumatic conditions including JIA.
Like and follow their page for more information.As an effort to bridge the gap between parents, physicians, home doctors and specialised paediatric rheumatologists, we will facilitate the exchange of knowledge and important information regarding paediatric rheumatology through our weekly #Thursdaywordday!

Every Thursday, we’ll start a discussion on an important topic on juvenile rheumatic diseases. Watch this space! #WORDday2019 ow.ly/Mrwa30n4sWE
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