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Crieff 2017

Smile for the camera!

 

Great day out

Having a blast!

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Snac Logo AW-01-02

Welcome to SNAC, our community site that shares information on JIA, events that we hold and much more.

JIA (Juvenile Idiopathic Arthritis) affects about one in every thousand under 16s yet most people don’t even know that kids can get arthritis.

SNAC was set up by parents of kids with JIA to provide support and information for families affected by the condition. On our website you will find information and real life experience about

  • The various types of JIA and related conditions.
  • The therapies and medicines used to treat the condition
  • What is being done to improve the treatments and outcomes
  • How to cope, from first diagnosis onwards.

To anyone affected by JIA, we hope you find the content helpful and informative, we have worked with the Scottish Paediatric Rheumatology teams to ensure the content’s accuracy.

1000
One in a Thousand Kids get JIA
2008
SNAC Founded
429
Buzzys distributed

Recent Achievements

We love to celebrate the things that our kids achieve so here’s a few of the recent posts.  You can see some more in our Blogs

Kaydee makes the news!!

By | Acheivements, Fund Raising | No Comments

Young Kaydee Cowie from Buckie has, once again been working hard for SNAC.   She has been collecting stamps for our appeal for three years now and spreading the word about Juvenile Arthritis while she’s at it.  The clipping is form the Banffshire Advertiser and has been seen by thousands of people.

Well done Kaydee.

 

If you want to help with this then please save your used stamps (with a 10mm paper border, no whole envelopes please) and send to:
SNAC (Stamp Appeal),
FREEPOST RTKX-RZCC-ZSCR,
6 Citadel Crescent,
Stromness,
Orkney,
KW16 3EL.

Our Heroic Fundraisers

SNAC is run by a group of parent volunteers all of whom have a child with JIA (Juvenile Idiopathic Arthritis)   We love what we do and we get enormous satisfaction from seeing the difference that SNAC has made in peoples lives.

NONE of this would be possible without the army of people who give their time to raise funds on our behalf.  We’ll ost about as many as we can here but if you have helped and don’t see a post here then please get in touch and tell us all about it – with photos if you can!  This is the most recent few, please have a look at the Blogs to see what else has been happening!

Kaydee makes the news!!

By | Acheivements, Fund Raising | No Comments

Young Kaydee Cowie from Buckie has, once again been working hard for SNAC.   She has been collecting stamps for our appeal for three years now and spreading the word about Juvenile Arthritis while she’s at it.  The clipping is form the Banffshire Advertiser and has been seen by thousands of people.

Well done Kaydee.

 

If you want to help with this then please save your used stamps (with a 10mm paper border, no whole envelopes please) and send to:
SNAC (Stamp Appeal),
FREEPOST RTKX-RZCC-ZSCR,
6 Citadel Crescent,
Stromness,
Orkney,
KW16 3EL.

Edinburgh Marathon – Thank You!

By | Fund Raising, News, Past Events | No Comments

On Saturday and Sunday the 28th and 29th May 2016 SNAC T Shirts appeared at the Edinburgh Marathon once again. SNAC flags and banners were visible around the course in Edinburgh.

As runners waited for buses and queued for the toilets the purple T Shirts of SNAC began to emerge! 120 runners showed up and ran for the Charity!! The relay “pens” were dotted with purple. It was quite emotional to see the amount of support!

The SNAC committee are very overwhelmed and grateful for everyone’s kindness and efforts! We had entries in the children’s races, the full and half marathon, the 10k and the relay. We even had some children with arthritis taking part, which is wonderful!

The supporters around the course did a fantastic job of keeping everyone going and raising much needed awareness of children’s arthritis.

This year was the first time SNAC had a tent at the finish, supporters, runners and families all met. It was fantastic to see everyone who had given the time to support our Charity and raise funds and awareness for Children’ arthritis.

Money is still trickling in, however, your efforts have raised an enormous £25,000 this year!

We simply wish to say THANK YOU! We appreciate your support very much, hopefully we will see you all again in 2018!

If you have any photos from the day that we can add to the website please send them to winners@snac.uk.com and we’ll put them on.

Glasgow Rocks v Surrey Scorchers

By | Fund Raising, Past Events | No Comments

Glasgow Rocks v Surrey Scorchers 5pm Sunday 7th February 2016, Emirates Arena, Glasgow

Raising Funds for SNAC (Scottish Network for Arthritis in Children) Scotland’s only professional basketball team, Glasgow Rocks, will be taking on the Surrey Scorchers, and SNAC will be raising funds at the match.
We are delighted that the Rocks have, once again, given us discounted tickets to sell for the match, half the profits of which will come to the charity, and we will also have an information desk to tell people about the work SNAC does and to offer help and support to anyone living with childhood arthritis. With your support, we hope to raise a significant amount of money which will be used to fund our support work here in Scotland which will make a big difference to children who are living with arthritis right now. The cost of tickets for this brilliant evening of family fun and excitement is only £8 for adults and £5 for children under 16.

To reserve tickets, please email events@snac.uk.com
Tickets MUST be reserved in advance.

About JIA

Juvenile Arthritis

JIA presents itself in a number of different ways and the condition is split into 7 main groups. Learn more about them here.

What is JIA?

Treatment

Treatment varies by condition and how it affects the individual. We explain the medications used in the treatment and how they might affect your child.

Treatment

Research

The prognosis for JIA has been hugely improved over the last few decades and ongoing research has played a vital part of this. Find out how you can help and why it isn’t as scary as it seems.

Research

What’s Happening…

3 weeks ago

SNAC Scottish Network for Arthritis in Children
SNAC Family Day at Edinburgh Zoo

We're very pleased to be holding a SNAC family day at Edinburgh Zoo. Please see poster for more information and booking details.

SNAC Family Day at Edinburgh ZooAug 26, 9:00amEdinburgh ZooPlease email events@snac.uk.com for more information or to book a place.
... See MoreSee Less

Comment on Facebook

Caralyn Pitcaithly

Cheers Michelle Gerrard ✫ x

SNAC Family Day at Edinburgh Zoo

Please email events@snac.uk.com for more information or to book a place.

SNAC Family Day at Edinburgh ZooAug 26, 9:00amEdinburgh ZooPlease email events@snac.uk.com for more information or to book a place.
... See MoreSee Less

Comment on Facebook

Caralyn Pitcaithly

Cheers Michelle Gerrard ✫ x

You Are Here!

By | News | No Comments

We’ve used the wonders of the Internet to plot the locations (approximate) of every SNAC family that we have details for.   If you aren’t already a member please consider joining.  It’s free and helps us to keep in touch and plan what we do.

Join SNAC

Relax Kids – Glasgow

By | News, Upcoming Events | No Comments

SNAC are funding a series of Relax Kids courses around Scotland and we have places available for the sessions in Glasgow.
Elaine Cavana (Relax Kids coach) will deliver 3 inclusive Relax Kids sessions which are based on ‘7 steps’ of move; play; stretch; feel; breathe; believe; relax. The steps include games, yoga stretching, peer massage (optional), breathing techniques, positive affirmations and relaxation. The aim is to teach children techniques they can use to help them cope with their JIA journey.
When: Saturday 9.30-11.30am 10th June and 1-3pm on 17th/24th June 2017 all dates inclusive.

Where: Tesco Shettleston Extra, Community Room, Annick Street, Shettleston Industrial Estate, Glasgow, G32 7JE

Contact: Please see http://www.snac.uk.com/relax-kids-for-snac/ for examples of what you can expect. Please email cavana98@aol.com to book your place. For more information please either email or phone Elaine on 07984 237531

We’re all Going to the Zoo!

By | News, Upcoming Events | No Comments

SNAC are delighted to announce that we have booked a family day out at Edinburgh Zoo and all SNAC families are invited.

We will be providing transport from Aberdeen, Glasgow and the Borders.  For other areas we will see what can be done based on numbers and location.

The date is Saturday 26th August and the timing will be confirmed when the transport arrangements are known.

Please email events@snac.uk.com to register your interest and we’ll send out the details.

 

Relax Kids Feb/March 2017 Aberdeen

By | Activities, News, Past Events | No Comments

In Feb/March 2017 SNAC were delighted to fund another Relax Kids course of 3 sessions with Donna Fairley for children aged 6-11 with JIA from the Aberdeen area. Some feedback is shared below:

Each session took the children through Relax Kids ‘seven steps’: Move; Play; Stretch; Feel; Breathe; Believe; Relax.

Parents reflected on how the course had met their expectations:

“Kaydee (9) has enjoyed every session and talks about what she has learned with her school friends & family. Highly recommend the course”, Fiona Cowie, parent & SNAC Local Area Family Consultant.

“Over and above (expectations). Callum loved it and I could see how it worked. Callum used the tools” Holly Edmonds, parent.

“Eva…making new friends and also using the steps on a weekly basis, particularly around injection times.” Lesley Kane, parent.

“Lovely small group, no pressure, plenty of time to speak to other parents, share experiences and expectations. Skye always keen to come and participate in the group.” Nicola Burn, parent.

Parents shared their highlights “Seeing Callum use the tools at home ; Meeting other parents; Seeing Eva use the steps and tools given and actually wanting to use them; company of other parents; Skye feeling more confident and willing to share her experience of group and her condition with other people.”

Each child either made or was given a practical tool to take home every week. For example the ‘Mind Jar/Calm Bottle’ to model emotions, Hoberman Sphere to help with breathing exercises and ‘stretch cards’ with Yoga positions.

This group particularly enjoyed the breathing techniques taught with the peer massage, relaxation, games the Hoberman sphere: https://www.facebook.com/WellBalancedstudio/videos/1857194624554811/
and the calm bottle:
https://www.facebook.com/events/719050484930744/permalink/746932562142536/

All parents agreed the course was a good use of SNAC funds and would recommend the course to other parents of a child with JIA:

“hugely beneficial to the children and parents alike” Nicola Burn, parent.”

Edinburgh Clip ‘n’ Climb

By | Upcoming Events | No Comments

SNAC are hosting an event at Edinburgh Clip International Climbing Arena on Sunday 7th May 14:00 – 15:30.

The event is open to all kids with arthritis and their siblings, aged 4+

Adults can watch and have a chat.

For more information or to book a place please email tracyrendall@snac.uk.com or call on 07791789225.

Places are free but booking is essential.

Tubing in Ayrshire

By | Upcoming Events | No Comments

Calling all Ayrshire families!

This is activity is open to children with JIA and their siblings from 3years of age. Parents will get the chance to meet other families and have a chat. Bring along a picnic and join us for some fun on the slopes!

*In the first instance this is for Ayrshire families and will be offered to others if there are spaces left.*

To book your place please email dorothykent@snac.uk.com

 

Hoodles!

By | Past Events, Uncategorized | No Comments

Alison Ross, paediatric rheumatology nurse and Kate O’Donnell, SNAC committee member were delighted to welcome 6 families to Hoodles, Aberdeenshire, on Saturday 4th February 2017 for soft play, coffee and cake.
The children enjoyed party food, musical games and cupcake decorating in the party room after soft play. Thank you to everyone who came along!

Relax Kids – Aberdeen

By | Uncategorized | No Comments

SNAC are delighted to be able to fund another ‘Relax Kids’ course in Durno, near Inverurie 1.30-3.30pm on sat 18th, 25th Feb & 11th March 2017 inclusive of all dates for children with JIA aged 6-11 from the local Aberdeen/shire area.

Relax Kids sessions are based on ‘7 steps’ of move; play; stretch; feel; breathe; believe; relax. The steps include games, yoga stretching, peer massage (optional), breathing techniques, positive affirmations and relaxation. The aim is to give each child an understanding of what is happening when they get anxious (mindfulness) and practise techniques they can use to give them back control.

Some highlights from parents of children who attended last year include

  • Meeting others- children and carers;
  • Seeing Caitlin happy in a group of children;
  • Seeing my daughter coping better with new situations;
  • how much he enjoyed it;
  • Kaydee is benefitting from relaxation and doing it at home.

The Relax Kids course will be delivered by Donna Fairleys from her studio in Durno, about 6 miles north of Inverurie (3 Gordon Court, AB51 5ER). Donna’s studio is a very welcoming pleasant environment, warm with nice lighting and with lots of space in the car park.

There is a maximum capacity of 10-12 children aged 6-11 (p2-p7), parents are welcome to stay or leave, Inverurie is nearby. You’re welcome to watch or have tea/coffee in the adjacent room, partitioned by a curtain. Parents last year commented positively on the venue particularly the tea/coffee room which enabled them talk with each other.

There will be a break halfway through each session and children are asked to bring a snack and drink (where possible please avoid high sugar snacks/drink to enable relaxation).

If you are interested in a place please email kateodonnell@snac.uk.com

as soon as possible to secure your place with the name & age of your child, contact e-mail and mobile telephone number.

Please find below a link which summarises last years group experiences:
http://www.snac.uk.com/relax-kids-for-snac-march-2016/