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Crieff 2014

Having a great day out!

Great day out

Having a blast!

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Snac Logo AW-01-02

Welcome to SNAC, our community site that shares information on JIA, events that we hold and much more.

JIA (Juvenile Idiopathic Arthritis) affects about one in every thousand under 16s yet most people don’t even know that kids can get arthritis.

SNAC was set up by parents of kids with JIA to provide support and information for families affected by the condition. On our website you will find information and real life experience about

  • The various types of JIA and related conditions.
  • The therapies and medicines used to treat the condition
  • What is being done to improve the treatments and outcomes
  • How to cope, from first diagnosis onwards.

To anyone affected by JIA, we hope you find the content helpful and informative, we have worked with the Scottish Paediatric Rheumatology teams to ensure the content’s accuracy.

1000
One in a Thousand Kids get JIA
2008
SNAC Founded
337
Buzzys distributed

Recent Achievements

We love to celebrate the things that our kids achieve so here’s a few of the recent posts.  You can see some more in our Blogs

Our Heroic Fundraisers

SNAC is run by a group of parent volunteers all of whom have a child with JIA (Juvenile Idiopathic Arthritis)   We love what we do and we get enormous satisfaction from seeing the difference that SNAC has made in peoples lives.

NONE of this would be possible without the army of people who give their time to raise funds on our behalf.  We’ll ost about as many as we can here but if you have helped and don’t see a post here then please get in touch and tell us all about it – with photos if you can!  This is the most recent few, please have a look at the Blogs to see what else has been happening!

About JIA

Juvenile Arthritis

JIA presents itself in a number of different ways and the condition is split into 7 main groups. Learn more about them here.

What is JIA?

Treatment

Treatment varies by condition and how it affects the individual. We explain the medications used in the treatment and how they might affect your child.

Treatment

Research

The prognosis for JIA has been hugely improved over the last few decades and ongoing research has played a vital part of this. Find out how you can help and why it isn’t as scary as it seems.

Research

What’s Happening…

SNAC Scottish Network for Arthritis in Children added an SNAC at Aberdeen Science Centre Nov 2016. ... See MoreSee Less

SNAC are funding an event at @[243132997235:274:Aberdeen Science Centre] on Sunday 27th November 2-4.30pm. There will be a bubbles show for all ages, a Robot Hand workshop for age 6+, exhibits on the...

SNAC at Aberdeen Science Centre Nov 2016

Nov 27, 2:00pm - Nov 27, 4:30pm

SNAC Scottish Network for Arthritis in Children

SNAC are funding an event at Aberdeen Science Centre on Sunday 27th November 2-4.30pm. There will be a bubbles show for all ages, a Robot Hand workshop for age 6+, exhibits on the floor and refreshme...

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Fabulous, family adventures in the sunshine today at Foxlake.... ... See MoreSee Less

Kirsteen Stewart, Fiona Cowie and 22 others like this

SNAC Scottish Network for Arthritis in ChildrenGreat to have the sun shining for us at Foxlake. Lovely to meet some new families in the same position and see the kids (and adults) have such fun.3 days ago
Debbie Venters-ScottThank you for a great day and thanks for making us all Feel so welcome Cerys had a wonderful time look forward to meeting up again X3 days ago   ·  1
Anna AllanWas a fantastic morning and lovely to see the sunshine 😊 thankyou again to all at SNAC we had a brilliant time xx3 days ago   ·  1
Elizabeth GillanThanks everyone for organising today. We had a great day. And thanks everyone who gave caleb a little hand at certain points! X3 days ago   ·  1

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**FOR PARENTS OF CHILDREN WITH JIA IN THE ABERDEEN AREA ONLY**

SNAC are delighted to offer you the chance of winning 4 tickets to see ‘Disney on Ice presents Frozen’ on Sunday 11th December 2016 from 14.30 (doors open at 13.30) at the AECC GE Oil & Gas Arena. Seats are in Block S2, Seats R29-32. If you are the parent of a child with JIA in the Aberdeen area and would like to enter please comment below (one entry only please). The draw and winner will be announced on Monday 24th October 2016, the first day of term. Good Luck! ⛸🍀
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INFORMATION ABOUT THE ANNUAL INFLUENZA “FLU” VACCINATION 2016

Children and young people with rheumatic conditions should receive Influenza “flu” vaccine each year.

Children and young people treated with any of the disease modifying or biologic treatments listed below should receive the inactivated vaccine (Fluarix Tetra, Split Virion BP). This is given as an injection by your GP or primary school. Please discuss with your child’s school if an injectable flu vaccination is available in schools in your area.

You should not accept the nasal spray “flu” vaccination (Fluenz) currently offered in schools to preschool and primary school children. This is a live vaccine and not advised for children taking any of the disease modifying or biologic treatments listed below. The British Society for Paediatric and Adolescent Rheumatology follows RCPCH Guidance on Immunisation of the Immunocompromised Child.

Instead, children & young people treated with any of the following treatments should receive inactivated influenza vaccination by IM injection at the GP surgery or in primary school:

Abatacept, Adalimumab (Humira), Anakinra, Azathioprine, Canakinumab, Ciclosporin, Cyclophosphamide, Etanercept (Benepali or Enbrel), Golimumab, Infliximab (Remicade or Remsima), Methotrexate (Metoject), Mycophenolate Mofetil (MMF), Rituximab, Secukinumab (Cosentyx), Steroids (prednisolone or methylprednisolone), Tocilizumab


UPDATE ON IMMUNISATIONS IN CHILDREN TREATED FOR RHEUMATIC CONDITIONS

We encourage all children and young people to be vaccinated where possible. The following vaccinations are inactivated and are therefore safe to be given whilst on disease modifying or biologic treatment for rheumatic conditions:

The 5-in-1 vaccine, also known as the DTaP/IPV/Hib
Pneumococcal vaccine (PCV)
Meningococcal Type B
Hib/Men C
DTaP/IPV pre-school booster
HPV vaccine
3-in-1 teenage booster (tetanus, diphtheria and polio)
Men ACWY vaccine
Hepatitis B vaccine (not part of standard UK but may be offered)
Inactivated Flu vaccine (Fluarix Tetra, Split Virion BP)

Children and young people with rheumatic conditions who are treated with disease modifying or biologic treatments (detailed below) should not receive any live vaccines. These include:

Measles, mumps and rubella (MMR) vaccine
Nasal drop Influenza “Flu” vaccine (FLUENZ)
Rotavirus vaccine
Chickenpox vaccine (varicella) (not part of standard UK but may be offered)
BCG tuberculosis (TB) vaccine (not part of standard UK but may be offered)
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Lois Smith, Margaret Blake and 9 others like this

SNAC Scottish Network for Arthritis in ChildrenThe full text of the letter from the Rheumatology team is now on the SNAC website at www.snac.uk.com/important-information-about-vaccinations. Please only use the contact details provided if your child is cared for by these teams, otherwise contact your local team.2 weeks ago   ·  1

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SNAC Scottish Network for Arthritis in Children added an SNAC Event at Foxlake. ... See MoreSee Less

This is a great opportunity for your family to meet other families with children who have JIA. Aimed specifically for 6 years and above (younger children may also attend but will be unable to take par...

SNAC Event at Foxlake

Sep 25, 10:30am - Sep 25, 1:00pm

Foxlake Adventures

This is a great opportunity for your family to meet other families with children who have JIA. Aimed specifically for 6 years and above (younger children may also attend but will be unable to take par...

SNAC CHRISTMAS CARD COMPETITION 2016

CALLING ALL CHILDREN WITH JIA AND THEIR SIBLINGS

What you need to do:
Create an original design for our Christmas Card. You can use any technique or medium that you like. You can include some aspect of having JIA if you want to but this is not compulsory.

Criteria:
The design must be A4 size, portrait format.
Please DO NOT write your name and address on the back of the design but on a seperate piece of paper.
There will be 3 age categories; 8yrs and under
12 yrs and under
16 yrs and under.

How to enter the competition:
Create your design and post it to Fiona Donaldson Burnie House, Auchenblae,Aberdeenshire, AB30 1TS.... no later than Friday 30th September. Please enclose a seperate piece of paper with your name and address and age on it.

GOOD LUCK
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If you have any queries, get in contact. Contact SNAC