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Crieff 2014

Having a great day out!

 

Great day out

Having a blast!

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Snac Logo AW-01-02

Welcome to SNAC, our community site that shares information on JIA, events that we hold and much more.

JIA (Juvenile Idiopathic Arthritis) affects about one in every thousand under 16s yet most people don’t even know that kids can get arthritis.

SNAC was set up by parents of kids with JIA to provide support and information for families affected by the condition. On our website you will find information and real life experience about

  • The various types of JIA and related conditions.
  • The therapies and medicines used to treat the condition
  • What is being done to improve the treatments and outcomes
  • How to cope, from first diagnosis onwards.

To anyone affected by JIA, we hope you find the content helpful and informative, we have worked with the Scottish Paediatric Rheumatology teams to ensure the content’s accuracy.

1000
One in a Thousand Kids get JIA
2008
SNAC Founded
337
Buzzys distributed

Recent Achievements

We love to celebrate the things that our kids achieve so here’s a few of the recent posts.  You can see some more in our Blogs

Kaydee makes the news!!

By | Acheivements, Fund Raising | No Comments

Young Kaydee Cowie from Buckie has, once again been working hard for SNAC.   She has been collecting stamps for our appeal for three years now and spreading the word about Juvenile Arthritis while she’s at it.  The clipping is form the Banffshire Advertiser and has been seen by thousands of people.

Well done Kaydee.

 

If you want to help with this then please save your used stamps (with a 10mm paper border, no whole envelopes please) and send to:
SNAC (Stamp Appeal),
FREEPOST RTKX-RZCC-ZSCR,
6 Citadel Crescent,
Stromness,
Orkney,
KW16 3EL.

Our Heroic Fundraisers

SNAC is run by a group of parent volunteers all of whom have a child with JIA (Juvenile Idiopathic Arthritis)   We love what we do and we get enormous satisfaction from seeing the difference that SNAC has made in peoples lives.

NONE of this would be possible without the army of people who give their time to raise funds on our behalf.  We’ll ost about as many as we can here but if you have helped and don’t see a post here then please get in touch and tell us all about it – with photos if you can!  This is the most recent few, please have a look at the Blogs to see what else has been happening!

Kaydee makes the news!!

By | Acheivements, Fund Raising | No Comments

Young Kaydee Cowie from Buckie has, once again been working hard for SNAC.   She has been collecting stamps for our appeal for three years now and spreading the word about Juvenile Arthritis while she’s at it.  The clipping is form the Banffshire Advertiser and has been seen by thousands of people.

Well done Kaydee.

 

If you want to help with this then please save your used stamps (with a 10mm paper border, no whole envelopes please) and send to:
SNAC (Stamp Appeal),
FREEPOST RTKX-RZCC-ZSCR,
6 Citadel Crescent,
Stromness,
Orkney,
KW16 3EL.

Edinburgh Marathon – Thank You!

By | Fund Raising, News, Past Events | No Comments

On Saturday and Sunday the 28th and 29th May 2016 SNAC T Shirts appeared at the Edinburgh Marathon once again. SNAC flags and banners were visible around the course in Edinburgh.

As runners waited for buses and queued for the toilets the purple T Shirts of SNAC began to emerge! 120 runners showed up and ran for the Charity!! The relay “pens” were dotted with purple. It was quite emotional to see the amount of support!

The SNAC committee are very overwhelmed and grateful for everyone’s kindness and efforts! We had entries in the children’s races, the full and half marathon, the 10k and the relay. We even had some children with arthritis taking part, which is wonderful!

The supporters around the course did a fantastic job of keeping everyone going and raising much needed awareness of children’s arthritis.

This year was the first time SNAC had a tent at the finish, supporters, runners and families all met. It was fantastic to see everyone who had given the time to support our Charity and raise funds and awareness for Children’ arthritis.

Money is still trickling in, however, your efforts have raised an enormous £25,000 this year!

We simply wish to say THANK YOU! We appreciate your support very much, hopefully we will see you all again in 2018!

If you have any photos from the day that we can add to the website please send them to winners@snac.uk.com and we’ll put them on.

Glasgow Rocks v Surrey Scorchers

By | Fund Raising, Upcoming Events | No Comments

Glasgow Rocks v Surrey Scorchers 5pm Sunday 7th February 2016, Emirates Arena, Glasgow

Raising Funds for SNAC (Scottish Network for Arthritis in Children) Scotland’s only professional basketball team, Glasgow Rocks, will be taking on the Surrey Scorchers, and SNAC will be raising funds at the match.
We are delighted that the Rocks have, once again, given us discounted tickets to sell for the match, half the profits of which will come to the charity, and we will also have an information desk to tell people about the work SNAC does and to offer help and support to anyone living with childhood arthritis. With your support, we hope to raise a significant amount of money which will be used to fund our support work here in Scotland which will make a big difference to children who are living with arthritis right now. The cost of tickets for this brilliant evening of family fun and excitement is only £8 for adults and £5 for children under 16.

To reserve tickets, please email events@snac.uk.com
Tickets MUST be reserved in advance.

About JIA

Juvenile Arthritis

JIA presents itself in a number of different ways and the condition is split into 7 main groups. Learn more about them here.

What is JIA?

Treatment

Treatment varies by condition and how it affects the individual. We explain the medications used in the treatment and how they might affect your child.

Treatment

Research

The prognosis for JIA has been hugely improved over the last few decades and ongoing research has played a vital part of this. Find out how you can help and why it isn’t as scary as it seems.

Research

What’s Happening…

Some replies from the room:

What causes JIA?
Can my child grow out of it?
Will there ever be a cure?
What are the long term effects of meds?
... See MoreSee Less

Comment on Facebook

Would love to be there to have those questions answered . Sophie will be old enough next year so hopefully we can attend x .

Research talk with Dr Joyce Davidson. Session started with this question...

Research talk with Dr Joyce Davidson. Session started with this question... ... See MoreSee Less

5 days ago

SNAC Scottish Network for Arthritis in Children
Youngest group - happy and engaged makes us happy 😊 too

Youngest group - happy and engaged makes us happy 😊 too ... See MoreSee Less

Comment on Facebook

Brilliant pics .... 👋

Chilling in between sessions....weather amazing at Crieff 😎😎

Chilling in between sessions....weather amazing at Crieff 😎😎 ... See MoreSee Less

Comment on Facebook

Knocked it off with the weather!!!

Tips for taking Methotrexate by Imogen Kelly rheumatology nurse specialist (medicines talk) at Crieff SNAC family weekend. 
Any more?

Tips for taking Methotrexate by Imogen Kelly rheumatology nurse specialist (medicines talk) at Crieff SNAC family weekend.
Any more?
... See MoreSee Less

Comment on Facebook

Give injection before eating a meal not after?Use of a buzzy on injection site?

5 days ago

SNAC Scottish Network for Arthritis in Children

... See MoreSee Less

Hoodles!

By | Past Events, Uncategorized | No Comments

Alison Ross, paediatric rheumatology nurse and Kate O’Donnell, SNAC committee member were delighted to welcome 6 families to Hoodles, Aberdeenshire, on Saturday 4th February 2017 for soft play, coffee and cake.
The children enjoyed party food, musical games and cupcake decorating in the party room after soft play. Thank you to everyone who came along!

Relax Kids – Aberdeen

By | Uncategorized | No Comments

SNAC are delighted to be able to fund another ‘Relax Kids’ course in Durno, near Inverurie 1.30-3.30pm on sat 18th, 25th Feb & 11th March 2017 inclusive of all dates for children with JIA aged 6-11 from the local Aberdeen/shire area.

Relax Kids sessions are based on ‘7 steps’ of move; play; stretch; feel; breathe; believe; relax. The steps include games, yoga stretching, peer massage (optional), breathing techniques, positive affirmations and relaxation. The aim is to give each child an understanding of what is happening when they get anxious (mindfulness) and practise techniques they can use to give them back control.

Some highlights from parents of children who attended last year include

  • Meeting others- children and carers;
  • Seeing Caitlin happy in a group of children;
  • Seeing my daughter coping better with new situations;
  • how much he enjoyed it;
  • Kaydee is benefitting from relaxation and doing it at home.

The Relax Kids course will be delivered by Donna Fairleys from her studio in Durno, about 6 miles north of Inverurie (3 Gordon Court, AB51 5ER). Donna’s studio is a very welcoming pleasant environment, warm with nice lighting and with lots of space in the car park.

There is a maximum capacity of 10-12 children aged 6-11 (p2-p7), parents are welcome to stay or leave, Inverurie is nearby. You’re welcome to watch or have tea/coffee in the adjacent room, partitioned by a curtain. Parents last year commented positively on the venue particularly the tea/coffee room which enabled them talk with each other.

There will be a break halfway through each session and children are asked to bring a snack and drink (where possible please avoid high sugar snacks/drink to enable relaxation).

If you are interested in a place please email kateodonnell@snac.uk.com

as soon as possible to secure your place with the name & age of your child, contact e-mail and mobile telephone number.

Please find below a link which summarises last years group experiences:
http://www.snac.uk.com/relax-kids-for-snac-march-2016/

2016 Highlights

By | News | No Comments

This slide give an idea of what SNAC has been up to in 2016.

Kaydee makes the news!!

By | Acheivements, Fund Raising | No Comments

Young Kaydee Cowie from Buckie has, once again been working hard for SNAC.   She has been collecting stamps for our appeal for three years now and spreading the word about Juvenile Arthritis while she’s at it.  The clipping is form the Banffshire Advertiser and has been seen by thousands of people.

Well done Kaydee.

 

If you want to help with this then please save your used stamps (with a 10mm paper border, no whole envelopes please) and send to:
SNAC (Stamp Appeal),
FREEPOST RTKX-RZCC-ZSCR,
6 Citadel Crescent,
Stromness,
Orkney,
KW16 3EL.

Aberdeen Science Centre (Satrosphere)

By | News, Past Events | No Comments

Thank you so much to everyone who attended Aberdeen Science Centre this afternoon and to Alison Elder, Alison Ross & Willie Templeton for your fantastic support! SNAC families made some great robot hands & mini robots, had fun with bubbles & enjoyed cake and chat 🍰 🍪

Thank you

Kate O’Donnell

A wee update on the SNAC Stamp Appeal

By | Uncategorized | No Comments

£404.77 has been raised to date for SNAC. 

Part of SNAC’s mission statement is to raise public awareness of JIA so if you have collected stamps for SNAC you have also been helping us to do that at the same time so THANK YOU – THANK YOU!

Christmas is a great time of year to starting saving used stamps for this ongoing campaign. 

Please save your used stamps (with a 10mm paper border, no whole envelopes please) and send to:
SNAC (Stamp Appeal),
FREEPOST RTKX-RZCC-ZSCR,
6 Citadel Crescent,
Stromness,
Orkney,
KW16 3EL.

Please feel free to print the pictures as labels that you can stick to a shoe box to start your own collection.

If you collect stamps for SNAC please share your story by emailing winners@snac.uk.com. We love to hear from you!

Thank you for your support!

 

Jack & the Beanstalk

By | News, Uncategorized, Upcoming Events | No Comments

SNAC are delighted to present the wonderful tale of Jack and the Beanstalk performed by the Hopscotch Theatre Company.

A funny and entertaining performance, suitable for the whole family of ‘Jack and the Beanstalk’ starting at: 2.00pm – Doors open at 1.30pm

SATURDAY 3rd DECEMBER

Stewart’s Melville College (Tom Flemming Centre)
Queensferry Road, Edinburgh, EH4 3EZ

You can download the poster

55 minutes of fun, songs, jokes and laughter with
Hopscotch’s pantomime for children with arthritis
(or any other rheumatological condition) and their families.

 

Competition Winner!!!

By | News | No Comments

We posted recently about a competition for families in the Aberdeen area for tickets for “Disney on Ice – Frozen”

We are delighted to announce that the draw was completed on the afternoon of 26th October by 2 pupils of Bervie School at assembly for ‘dress in purple’ day and Sarah Lewis is our winner! CONGRATULATIONS!!!

Thanks to everyone who entered.

UPDATED!-Competition for families in the Aberdeen area ⛸

By | News, Uncategorized | No Comments

SNAC are delighted to offer you the chance of winning 4 tickets to see ‘Disney on Ice presents Frozen’ on Sunday 11th December 2016 from 14.30 (doors open at 13.30) at the AECC GE Oil & Gas Arena.
Seats are in Block S2, Seats R29-32. If you are the parent of a child with JIA who attends RACH and would like to enter please email kateodonnell@snac.uk.com (one entry only please).

The draw and winner will be announced on Monday 24th October 2016, the first day of term. Good Luck! ⛸

Please note edit to above post extending the competition to entries by 10.00am on Wednesday 26th October, winner will be announced the same evening.
Do you have a child with JIA in the Aberdeen area who would like to win these tickets? If so please enter as described above.