Crieff 2019

Wave for the camera!

 

Great day out at Edinburgh Zoo!

Having a blast!

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Snac Logo AW-01-02

Welcome to SNAC, our community site that shares information on JIA, events that we hold and much more.

JIA (Juvenile Idiopathic Arthritis) affects about one in every thousand under 16s yet most people don’t even know that kids can get arthritis.

SNAC was set up by parents of kids with JIA to provide support and information for families affected by the condition. On our website you will find information and real life experience about

  • The various types of JIA and related conditions.
  • The therapies and medicines used to treat the condition
  • What is being done to improve the treatments and outcomes
  • How to cope, from first diagnosis onwards.

To anyone affected by JIA, we hope you find the content helpful and informative, we have worked with the Scottish Paediatric Rheumatology teams to ensure the content’s accuracy.

1000
One in a Thousand Kids get JIA
2008
SNAC Founded
429
Buzzys distributed

Recent Achievements

We love to celebrate the things that our kids achieve so here’s a few of the recent posts.  You can see some more in our Blogs

Our Heroic Fundraisers

SNAC is run by a group of parent volunteers all of whom have a child with JIA (Juvenile Idiopathic Arthritis)   We love what we do and we get enormous satisfaction from seeing the difference that SNAC has made in peoples lives.

NONE of this would be possible without the army of people who give their time to raise funds on our behalf.  We’ll ost about as many as we can here but if you have helped and don’t see a post here then please get in touch and tell us all about it – with photos if you can!  This is the most recent few, please have a look at the Blogs to see what else has been happening!

About JIA

Juvenile Arthritis

JIA presents itself in a number of different ways and the condition is split into 7 main groups. Learn more about them here.

What is JIA?

Treatment

Treatment varies by condition and how it affects the individual. We explain the medications used in the treatment and how they might affect your child.

Treatment

Research

The prognosis for JIA has been hugely improved over the last few decades and ongoing research has played a vital part of this. Find out how you can help and why it isn’t as scary as it seems.

Research

What’s Happening…

A chance to say farewell to the RHSC in Edinburgh prior to their move to Little France  in July.

A chance to say farewell to the RHSC in Edinburgh prior to their move to Little France in July.The Royal Hospital for Sick Children is moving to its new home at Little France in July.

On 23 June there will be a Farewell Service to commemorate the move. This is an opportunity for anyone with an emotional connection to the Royal Hospital for Sick Children, The Sick Kids, to come and mark the move from its current home to the new building. In particular, we invite those families who wish to remember a loved one no longer here. We encourage the attendance of those whose children’s lives have been impacted by illness, injury or a long term connection to the hospital. We also invite local residents, staff and volunteers who have played such an important part in the history of this hospital.

The short service will take place in the car park at the front of the hospital on Sciennes Rd. Please come prepared for possible inclement weather, no booking required.
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A massive thank you to Scott and Louise for taking part in the Edinburgh Half Marathon and raising over £800 for SNAC 👏🏻

A massive thank you to Scott and Louise for taking part in the Edinburgh Half Marathon and raising over £800 for SNAC 👏🏻 ... See MoreSee Less

 

Comment on Facebook

I forgot to let you all know that I completed the emf 10k on sat for snac too x funds still coming in x

Well done, cracking effort!!

Well done guys!

Celebrating our 10th Anniversary in style. Please join us.

Celebrating our 10th Anniversary in style. Please join us. ... See MoreSee Less

10 years since SNAC (Scottish network for arthritis in children) began.  Also the 10th anniversary of SPARN(Scottish Paediatric and Adolescent Rheumatology Network) and Versus Arthritis. These services combined have hugely improved the support, treatment and care for children and families living with  arthritis.  
Quote below from Fiona Donaldson, SNAC’s Chair, who attended the Arthritis and Musculoskeletal Cross Party Group event ‘The Elephant in the Room’ at the Scottish Parliament. This was chaired by Brian Whittle MSP with representatives also from SPARN and Versus Arthritis last night. 

“15 years ago when Anna was diagnosed I remember only too well the isolation and fear, makes me rather proud to be a part of something that makes such a difference to families lives when they have this level of care and support available to them” 

Thank you Fiona for representing SNAC.

10 years since SNAC (Scottish network for arthritis in children) began. Also the 10th anniversary of SPARN(Scottish Paediatric and Adolescent Rheumatology Network) and Versus Arthritis. These services combined have hugely improved the support, treatment and care for children and families living with arthritis.
Quote below from Fiona Donaldson, SNAC’s Chair, who attended the Arthritis and Musculoskeletal Cross Party Group event ‘The Elephant in the Room’ at the Scottish Parliament. This was chaired by Brian Whittle MSP with representatives also from SPARN and Versus Arthritis last night.

“15 years ago when Anna was diagnosed I remember only too well the isolation and fear, makes me rather proud to be a part of something that makes such a difference to families lives when they have this level of care and support available to them”

Thank you Fiona for representing SNAC.
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Comment on Facebook

Happy birthday 🎂 🎉

Well done to everyone who has made SNAC so successful..!!

3 months ago

SNAC Scottish Network for Arthritis in Children

A flavour of SNAC’s 10th Annual Family Weekend 2019. Great to be with such fabulous and brave kids, and their families, who all just want to have more info, and meet others in same situation, whilst having fun! The SNAC committee thoroughly enjoyed the weekend too.
Thank you to the 12 Scottish Paediatric Rheumatology Staff who gave up their weekend to support our event. #grateful #kidsgetarthritistoo #itsnotonlyme #juvenilearthritis
@ Crieff Hydro Hotel
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Comment on Facebook

Thank you so much to the amazing SNAC committee for delivering this awesome family weekend, so much new JIA knowledge and wonderful friendships taken back home with us 🥰

Thank you to all for a great weekend xx